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 The Jansen's Foundation

Home
Jansen's Info
Diagnosing
Signs & Symptoms
School Accomodations
Resources
Presenting Jansen's at School
About
Goal
Founder's Story
Board Members
Medical & Scientific Advisory Board
Team Jansen's
Partners
Our Community
Jansen's' Stories
The Reality
News
Blog
Events
Events
Walkathon
Contact
TJFShop
Donate
October 24, 2019
JANSEN'S FOUNDATION
When Your Child With a Rare Disease Doesn’t ...

What if your child is not feeling so Brave? Why do we prize bravery as the ability not to feel afraid?

When Your Child With a Rare Disease Doesn’t Feel Brave
February 4, 2019
JANSEN'S FOUNDATION
SERVANT LEADERSHIP AND COLLABORATIVE PATHWAYS ...

The principles of servant leadership can guide visionary leaders to consider all facets: service to the community, patient care, and relationships built on respect and compassion. The rare disease leader’s supportive direction and vision maintains the unity and common purpose of the rare community. This organizational approach engages the community and promotes thoughtful insight and opportunities for establishing compassionate collaborative partnerships in all settings. It reminds us of the work that together we set out to do: bring cures to those who need it.

SERVANT LEADERSHIP AND COLLABORATIVE PATHWAYS TO CURES
JANSEN'S FOUNDATION
August 9, 2016

To My Sons' School Physical Therapist Who Made Them Feel at Home

JANSEN'S FOUNDATION
August 9, 2016

When we arrived in America a year ago, there was much we had to get used to. We had deferred dreams and packed memories up in bright suitcases, and moved toward a sparkling horizon. And although promises lay waiting to be unearthed, the greatest challenge was for my two little boys to feel at home in a new environment.

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JANSEN'S FOUNDATION
April 15, 2016

What I Learned From My Father About Parenting a Child With a Rare Disease

JANSEN'S FOUNDATION
April 15, 2016
What I Learned From My Father About Parenting a Child With a Rare Disease

The role Neena’s father played in creating resilience and determination.

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JANSEN'S FOUNDATION
March 10, 2016

When a Stranger on the Other Side of the World Led Me to My and My Sons’ Rare Diagnosis

JANSEN'S FOUNDATION
March 10, 2016
When a Stranger on the Other Side of the World Led Me to My and My Sons’ Rare Diagnosis

Exhausted and vulnerable, I was worn. Like a festering wound that refused to heal, I was powerless to stop my boys from being poked, prodded, X-rayed, scanned and investigated.

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The Jansen's Foundation, PO BOX 115, Elkhorn, NE, 68022, US402-457-9886info@thejansensfoundation.org

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